Healthy Pacing For Deadlines

As I attempt to slowly escape from my pain tunnel, and return to a consist level of health, I have resumed working on projects that have lain dormant for years. This is in addition to my very slow writing. Whilst speech recognition really helps, it is also annoying since there are still errors and navigating is a pain, plus I used to be able to type so quickly, thus it just feels slow.

Over the last two years whilst I’ve had a lot of bedrest I contemplated how best to make use of my time once I was a bit better; sleep deprivation didn’t help with thinking, but at least I did have a lot of time to think. Making plans was difficult, since for a long-time I had no discernible improvement. When I did have a day where I felt a tiny bit better, there was an urge to instantly declare it a breakthrough. I eventually learnt that those days were not something to base plans upon. So ultimately I made plan making itself a goal, to make small goals, to make tiny notes.


I am now at the stage where I can work at a computer for a short while without instant agony. I came to realise that my problem about goal setting is not much different from a healthy person’s situation, that it’s all about pacing and being realistic. Clearly I need to be more careful, to take constant breaks, and keep to small tasks. If I am lucky I can manage what used to be a few hours of work, is now spread out over the whole day, maybe even a week. Doing work like this is also a form of physiotherapy, I need to get used to being more active, and since my level of activity is so low, this makes a big difference.

This means I am now able to implement realistic deadlines, albeit feeble ones. As I get a better understanding of my new pathetic work rate, I can alter my deadline projections to better reflect things. Then as my health hopefully keeps gradually improving, I can adjust further.

The urge to do more is ever present. I have already plenty of experience of slowly healing, then carefully going back to work, to find out that it was too much. It’s odd to think that whilst being careful, I was in fact rushing. There is a difference between a typical injury, even breaking a bone, and chronic problems, but understandably most people have not grown up with chronic problems so we haven’t learned about the differences, and how that affects recovery. When long-term bedrest, and thus atrophy, is a factor, things are further complicated.

health chart

I made the chart above to help remind myself to be careful. The vertical axis represents a hypothetical percentage of health. I didn’t think there was any point tracking my progress over time, since my healing has been so slow, and it’s only recently I can realistically do a variety of things. Even when I get to a theoretical average health level, I’ll be far from fit. I have broken the habit of exercising a lot, but my mind still wants to make comparisons, and of course reminisce about my old healthy days; as much as people say mind over matter, and focus on positive thinking, I am not in a position like I used to be of simply training hard to get stronger.

My recent story writing has been very slow, due to doing other things. It’s not that I feel burnt out, it’s that I have a deadline for the end of this month to make progress with my Elemental role-playing game I am started running in May. Although I started work on this project thirteen years ago, there is still way too much to do, my own fault for designing something astronomical in scale. I have also started work on a comic for a PBM style role-playing game. More on these two projects soon.

Escaping the Tunnel

To maybe help speed up my slow healing, and in particular to help alleviate stress, two groups of friends invited me to stay with them. I got to once again visit the wonderful country of Sweden, and thankfully the trip didn’t spike my physical problems. I kept up my physiotherapy exercises, and even started doing a little bit more. The stress relief from being in holiday mode really helped, ignoring the stress of travelling. In addition to spending time with friends, some great walks I also got to spend time with a lovely dog, and then a pride of cats.

Sadly the last few days of my trip were undermined by some jaw pain, that escalated, and by the time I got home it had become quite horrific. I was prescribed two antibiotics, which heavily affected my ability to eat and sleep; this lead to some drastic weight loss. Thankfully my dentist gave me the all clear regarding no damage to my teeth, but it did leave me wondering how I had developed the problem. I don’t know whether the infection was so bad due to my lowered immune system, but that was surely a factor.

This life update highlights how escaping from long-term chronic pain and sleep deprivation, seems to be like crawling out of a very long tunnel. For the last few months it has felt like I was finally nearing freedom, to escape in to the light, and I could return to a more productive and healthy life. It even seems like my metaphorical pain/illness tunnel has minions dragging me further back in.

I did manage to get some speech recognition writing done, both on my fiction and game mechanics, but obviously I could have gotten more if I was healthier. This was partly why I didn’t blog for two months, but at least things are improving again. Also, after thirteen years I finally started playtesting a game I’ve been working on, but I’ll write about that in a later post.

I had contemplated during some drawing for this post, since I couldn’t find what I envisioned. I made a simple stick figure drawing as an idea bouncing exercise, but my wrist RSI started to flare-up, so I didn’t get beyond:


I then decided to keep things simple and photograph something; this also meant I had an extra reason to walk, which is great physiotherapy. I took some pictures of the Blackpool North train station underpass. I thought it would make an interesting photography location given its local significance, and the painted walls give it some extra character. I appreciate I could have used some lovely free artwork, like on

Bat station

Post DWP Appraisal Hell And What Next

I don’t feel depressed, which is nice, but having received the notification that my DWP appraisal found me fit for work back in December I have had to deal with quite a lot of anger. As I mentioned previously, the person that I saw dismissed sleep deprivation as a key component of health, and the importance it plays in both healing, altering perception of pain, as well as chronic pain causing sleep problems. In hindsight it seems I was tested for paralysis? I make this ridiculous claim since the person asked “can you move without pain?” and then when I yet again explained about constant pain changed to “can you move your arm a bit?” Even a question about wearing clothes, and I explained I had been spending the majority of time resting in bed not wearing any was seemingly dismissed.

Two weeks ago, I started getting some decent sleep, after a week of course that ended, but it was blissful, and really helped me in regards to getting a bit more done via speech recognition whilst doing some physiotherapy. Like most of my design work for the last few years, I have a growing collection of unfinished blog posts about things that interest me, and I hope a few others might like; particular role-playing related. I am reminded of the advice I read about decide what a blog is about, and stick to it, I decided the blog was about me, thus that covers discursive thoughts.

I’ve had a combination of extra health issues this last week, things like flu that normally are annoying, but given the slow overall health progress hit me like a ton weight.  I woke up quite dizzy today, and the feeling hasn’t gone away, and a fog has been added. Slightly lazy, but since I am not writing a science blog, this link will suffice:

I have been advised I can appeal the appraisal, and to consider making a claim for Jobseekers. Given that I still have day-to-day health issues, and doing even very little can cause problems, it’s a bit ridiculous that if I was allegedly fit for work over a month ago, and I’ve had more healing and physiotherapy then why I am still struggling so much still? It’s really hard to consider going to look for work when I cannot even manage basic sleep, and I still have physical limitation and pain. Add to this the fact I am in this mess due to trying to work through problems, getting some healing and then going back and making things worse, on multiple occasions. I know I am far from well, so it would be the definition of insanity: doing the same thing again and expecting a different outcome. Since I can live off my bank account a while longer, I guess I will use my time to research options.

Another depressing blog post, so the next one will be something more upbeat and hopefully interesting to some.

DWP Appraisal Hell

I’ve not written (speech recognition of course) a blog for a while, mainly because I feel like I’ve had nothing to say, despite having plenty of things I’d like to write about. I got hit by severe depression in mid-October. Things have become better recently, but first a negative event I experienced.

A few days before Christmas I had a DWP appraisal, even though I’m not getting any money from benefits. The whole event was sickening, I don’t just mean metaphorically but also physically. I don’t think giving a detailed narrative is a worthwhile thing for me to do, and I imagine it would not be for anyone to read, but there are few things that stood out.

The first thing that struck me upon arriving at the site was how much like a prison the setup was, with a massive security fence and guards. The building entrance has a bizarre double door system, at least it had automated doors for those people that are really struggling physically, but the short corridor took up valuable room space, since the waiting area is split into two weird and quite small sections. Upon arrival people are informed that they are likely going to be waiting for over an hour, and given how they were already behind yet it was early morning, they could be waiting up to 2 hours. Given the uncomfortable claustrophobic waiting area that was quite unappealing.


Upon arrival every person seems to be surprised by this information, and several people had to cancel their appointment due to time constraints. The receptionist repeated the same few statements to each person about how the system is not their fault, and that they appreciate that a person may have to leave and schedule a new appointment. A man in a wheelchair arrived and was even informed that his appointment had been cancelled, although no one had actually contacted him to explain this, and the reasons given were classic examples of bureaucratic mismanagement, along with repeated statements by the receptionist that it is not their fault. It is easy to accept/agree that it is not the receptionist’s fault, but the fact that they are acting like a dismissive robot is their fault. I guess this is a learned behaviour given their job, and I can appreciate they may be used to receiving nasty comments, but they should at least wait for some before being so defensive, and dismissive.

Since I had walked a mile to get there I was already feeling the physical impact, and added to this was the fact that I had not slept for over a day due to the usual severe pain. I suppose I could have asked to reschedule, but I didn’t see how the next time would be much different. Sitting for a length of time escalates my pain, and can result in an inability to even sit due to my nervous system demanding that I stop doing the thing that is causing my pain to spike, it’s a weird retracting pain, the urge to move away becomes overwhelming, but obviously I can’t move away from my own body. Standing up or lying down at least changes things for a while until they become deemed to be the enemy.


Eventually I was seen by a physiotherapist, which was the first sign of trouble, since a key part of my problems, and long-term domino effects is sleep deprivation and thus the psychological impact of that should be considered, not just the physical. The interview proceeded to become a bizarre movie like style of being interrogated by stupid cop, who repeated the same questions, yet lacked any comprehension of what the answers meant. I was asked about my sleeping pattern, since I had written about it in my overview. I explained that I don’t have one due to the constant ongoing pain, which sometimes becomes unbearable and overrides even exhaustion, which over the last year and a half often resulted in missing huge chunks of sleep over the week so that I became so exhausted I could get a few hours sleep, and then probably not sleep for another day even though technically that means I’m down twelve hours. Then after a few weeks of this I would manage to get more sleep for a short-while, before the erratic sleep returned. I had to explain that I have had sleep deprivation problems continually, yet it still didn’t sink in, they then asked me what time I set my alarm for this day I explained I set it for nine but then highlighted that I hadn’t actually slept so they said “so you pattern is normally what nine then?” I genuinely had to resist the urge to scream at this person, instead I managed to yet again explain the situation using simple clear words. It was odd, instead of acknowledging this answer I was asked a bunch of weird questions about my how I use an alarm, and how I use a mobile phone. This then turned into further strange questions, which indicated the person didn’t believe what I was saying about not phoning people. This went on for quite some time, and towards the end I realised how much time jumping they had done in regards to trying to piece together a timeline, even though they had a detailed explanation written out in front of them from the four I had filled in previously.


The thing I take away from this interview is that it very much seemed like I was having to prove that I was innocent of committing fraud, that they were trying to trip me up by asking the same thing repeatedly, that they were desperate to find anything to latch onto to prove I was guilty of lying, such as the bizarre mobile phone questions. And then abruptly the interview ended and I was dismissed, at this stage the person had no interest in any further conversation, and was already trying to herd me out the door. Crucially there had been no questions about my psychological state, which given the symptoms should have been a key part of the interview. As I mentioned above, the gravitas of my situation finally hit me in October, the fact it been well over a year, and at this stage I had been suffering from depression for the last two months; it has been pointed out to me that my idea of depression and other people’s has a scale of difference, being fatalistically optimistic and the fact that I’ve had long-term pain of a different type for twenty years, I view depression as an inconvenience, and what I call depression others would categorise as major depression. Having a degree in psychology I am also academically aware of things, including the difficulty of self-diagnosis, and how our beliefs and biases influence our thoughts. I had been given medication to help with the sleep problem, and to help fight off depression, this was an area highlighted by my doctor; in hindsight I should have emphasised it.

If I had ticked the box regarding depression then I am sure I would have been allocated a doctor and not a physiotherapist for the interview, and some of the questions would have been about the psychological impact of my condition. I can at least acknowledge that my involvement is part of the reason why things went the way they did, of course considering I had written about being massively sleep deprived you’d think an assessor would highlight that issue.

Due to how physically demanding the whole event was, and the fact it lasted several hours, my pain levels later that day were a staggering fucking nine for several hours, before dropping back to my normally horrific six or seven. This is on top of the fact that I had not slept for what was approaching two days. Painkillers and alcohol didn’t do anything to the nine rating. I guess my body was flooded with cortisol both from the psychological interrogation as well as the scale of physicality I am not used to.

Miraculously four days later, on Christmas Day, I experienced several hours of a pain level of only one or two! Unfortunately that did not last, and even in to early January I was still probably averaging a six rating.

The shoulder and neck physiotherapy session have ended, I am still carrying out the exercises, and it does seem to have helped a lot. Having started physiotherapy for my stomach, back and hips it seems like the intense pain in my right midsection is starting to reduce a bit.

So once again my thoughts are flooded with daily ponderings about returning to exercise of a more tangible level, and even going back to martial arts in a few weeks, primarily BJJ. Realistically that goal is way off, even if things start improving faster, but it’s nice to have hopeful thoughts and even an anticipation of setting a simple goal. Next time something less depressing.

My Curious Cthulhu Visits

Several weeks ago I was abruptly awoken, but not due to my normal constant pain interrupting my sleep, but due to an abnormal feeling. I was quite surprised to see upon the ceiling a multitude of writhing tentacles. As my brain struggled to comprehend what I was perceiving, and my heart-rate raced, the tentacles slowly retreated back to what I eventually determined to be a porthole. Whilst I motionlessly observed things, I became aware of a single bizarre eye that was staring back at me, comprehending me in an alien way. For a moment I was gripped with terror, surprised by the insanity of the vista before me. I knew I was most clearly awake, but for a split second I wondered if reality had changed, or I was somewhere else. Seconds later I saw a small tumbling gorilla hovering between myself and the now closing porthole. A calming thought reminded me of the psychology experiment of video of the basketball game and the person in the gorilla suit… Focus on the gorilla, not the eldritch horror! My feelings of dread subsided as the last tentacle finally closed the porthole, then the gorilla left.

Over the week I experienced more interrupted sleep. Nothing unusual there, but the regular eldritch visitations certainly were, as were the tumbling gorillas; I even had one night when I saw a 4by4 grid of them.

I attempted to try and write about my experiences, but my words felt inadequate, failing to capture the depth of the visitations. I was struck by how ludicrously clichéd the idea of a sleep deprived writer going crazy was, plus as I analysed my writings/ramblings my normal hypercritical opinion of my work screamed at me that I was writing poor fanfiction.

Although I have been suffering from sleep deprivation for a year, what had recently changed was I had been prescribed Amitriptyline due to its common side effect of causing drowsiness. My doctor thought that using Amitriptyline combined with the Remedeine (opiate) could help over-ride the pain interpreting my sleep. I did initially manage to get a few nights of basic uninterrupted sleep before returning to lacking sleep; this was slightly better than my last year’s pattern. Whilst I might have had a bit more sleep that week, I decided to stop taking the drug, since most of the sleep I was getting resulted in a horrifying moment of anxiety when I woke. With the drug out of my system the hallucinations no long occurred.

All in all a fascinating set of experiences, that one day might result in some interesting fiction, and most certainly aid me running role-playing sessions, but I’d rather not have had to go through the process. Sleep wise I have struggled on, I am currently attempting some new non-pill approaches to improving my sleep, and to continue to try do as little as possible so I can prioritise healing.

One possible positive take away is that it seems during the initial hallucination I was quickly able to appreciate my situation, and crucially calm my freaking out heart-rate and panicking thoughts. The later visions just felt like I had to wait for the visitations to wrap-up. A paranoid thought follows this, that my brain chemistry might have been badly affected by the drug, on top of the long-term sleep issues, somehow sowing the seeds for a future psychotic breakdown, because one never knows. Thankfully I’ve had no hallucinations since, which beats my paranoia back in to a sensible state.

When Pathetic is not Pathetic

Since leaving my job due to my health I have felt almost no stress (until I ponder things in the future, so I mostly don’t), and this has helped relax the pain in my neck and shoulder. Doing much of anything is still too much, and doctors have repeatedly emphasised complete rest is the most important thing, continuing my estimation game for when I can do more. Due to this I decided to not even force myself to finish a particular blog. This helpfully allows me to do something I enjoy: starting a whole load of things, mentally being happy with the direction, but not physically finishing them. Whilst I am financially paying for myself to rest, I decided that getting the most rest, to quicken healing, really is still the priority, because then I can return to actually doing some work.

As part of my continuing focus on resting, I have even avoided doing much dictation by speech recognition. I have a massive mental list of blog posts I have pondered writing for a while now:

  • role-playing articles
    • working at KJC Games
    • game design lessons
    • more gaming stories and the lessons I learned
    • my obsession with White Wolf
    • why GURPS is the best thing, yet I’ve never played
    • tidal force role-players
  • the difficulty of doing nothing,
  • energy levels and how to plan around them
  • chronic pain
  • martial arts
    • returning from injury
    • consideration of training partners when you cannot work at your old pace
  • NoobGrind articles
    • Various thoughts about gaming
    • Guild Wars 2
    • Path of Exile

There is an additional reason that I am avoiding finishing any blog posts, since I envisioned graphics that I feel really add to the articles. The problem being, whilst I can make art and graphs to at least an adequate level, they are not areas that I practice much, so it would take me a long-time to get things to a level I am satisfied with. This links to an issue of sitting at a computer for an extended period, I normally have pain in a variety of places, and thus it is not good for my body, nor is it me resting. Pathetic sounding, but it is the reality of my situation.

I’m also aware that my wanting to have graphics for a blog post, it is me entering into the dangerous territory of pushing these partially started articles towards needing to be near perfect. In a way this justifies me not having to do what I can, and then move on.

Graphics Needed
Well, it is still nice to have some graphics.

So I decided to write the above stream of consciousness, at least then I am writing my intent in regards to what I will be blogging about soon, and I don’t need graphics. Whilst I could again use the word pathetic, that should only apply if I was healthy and avoiding doing work. If your best is barely anything, and you are still managing to get bits done, then that is not pathetic.

Wallowing in Positivity

During my bed-rest I contemplated whether to write a post about things, frustration and embarrassment were strong impediments. Since I have been in a long-term holding pattern with regards to work, training, and well, life in general, it felt like writing a blog post was not worthwhile, since it would be full of vagaries without any conclusion. My circumstances have changed and it seemed odd if I skipped the following.

Things get better, things get worse. Psychologically I kept telling myself that this was my situation. For the last year, and particularly since November, my pain levels have been appalling. When there was a brief respite from pain, my optimism would ramp-up, I was eager to get back to training and work and in those moments it seemed like I was almost healthy again. The problem was that the respite barely lasted long, and usually was due to mixing pain killers with a bit alcohol; I had consulted with several doctors about it being okay to have 1 or 2 units of alcohol a day with my pain meds.

Besides the chronic left shoulder, neck and sometimes back pain, along with lack of sleep, things have been made worse by a lack of exercise. The weaker I get, the worse everything becomes. There were times that I felt like I could get out of bed and do something simple, not too strenuous, like a short walk, but when I did so, I suffered. Even the action of walking, was something I had to carefully consider, pretty obvious when you consider how the arms swing, and the interconnectivity of the body. So, was going for a short walk to help reduce my body’s deterioration, and a chance to get out and about a sensible thing to do, when it also could aggravate damaged areas.

It’s strange having to learn how to tolerate switching between being in chronic pain, to that of having a few hours a day when the pain is tolerable. As the pain level lowers I enter a strange mental place: like being at the eye of a tropical cyclone, allowing me to come out of the fortified cellar, however, coming out is a mistake, the storm has not gone! There is also the weird feeling of being both overtired yet having energy and the need to do something. Since exercise correlates with health and quality of life, I am also concerned about long-term health effects. That even after healing I could be facing a year of rebuilding just to reach a basic level, never mind something more athletic.

So, as the shoulder swelling and pain started reducing, returning to work became the target. A previous phased return to work had failed, since I attempted it shortly after no longer being bedridden, but this time I’d had more rest time, as well as a cortisone injection. I saw several Doctors and they advised that if work/lifestyle changes were in place, that preventative measures at work like using speech recognition: Dragon (DNS), that a phased return to work could help. Having a routine should help with my sleep pattern. That moving about a bit would start to strengthen me weak body as well as my energy levels; simply being out of bed for the day was tiring.

The last phased return to work failed. The pain levels had reduced drastically, but even after the cortisone injection I was not healed enough. Also despite new medication I still had severe problems sleeping.

I didn’t want to leave this job, it wasn’t too demanding, I found it interesting, and they even provided assistance to help keep me in work. Working for social services was also rewarding, since I was part of what is effectively the fourth emergency service, which I agree with. A further bonus was talking with social workers, who I found to be overwhelmingly genuinely nice people. It is easy to imagine that it simply comes with the territory, somebody working in a job where they have to prioritise another person’s needs, as well as a client’s capacity, would be a good person. However, given how tough the job is, the layers of bureaucracy (mostly appropriate), and the complexity of figuring out what is best for somebody, it would be naive to think that all social workers must be wonderful positive perfect people. As somebody interested in psychology and writing I’ve certainly learnt a lot from working there, as well as several interesting ideas to follow up on.

Now I am left with more bed-rest, careful physiotherapy, but a positive attitude that things will improve if I keep things simple and sensible. Throughout my experience I have felt like I am a few days away from being fine, when things were really bad, maybe a few weeks; odd to think that I have been wallowing in positivity. At least I have plenty of time to think about life plans.