I’ve not written (speech recognition of course) a blog for a while, mainly because I feel like I’ve had nothing to say, despite having plenty of things I’d like to write about. I got hit by severe depression in mid-October. Things have become better recently, but first a negative event I experienced.
A few days before Christmas I had a DWP appraisal, even though I’m not getting any money from benefits. The whole event was sickening, I don’t just mean metaphorically but also physically. I don’t think giving a detailed narrative is a worthwhile thing for me to do, and I imagine it would not be for anyone to read, but there are few things that stood out.
The first thing that struck me upon arriving at the site was how much like a prison the setup was, with a massive security fence and guards. The building entrance has a bizarre double door system, at least it had automated doors for those people that are really struggling physically, but the short corridor took up valuable room space, since the waiting area is split into two weird and quite small sections. Upon arrival people are informed that they are likely going to be waiting for over an hour, and given how they were already behind yet it was early morning, they could be waiting up to 2 hours. Given the uncomfortable claustrophobic waiting area that was quite unappealing.
Upon arrival every person seems to be surprised by this information, and several people had to cancel their appointment due to time constraints. The receptionist repeated the same few statements to each person about how the system is not their fault, and that they appreciate that a person may have to leave and schedule a new appointment. A man in a wheelchair arrived and was even informed that his appointment had been cancelled, although no one had actually contacted him to explain this, and the reasons given were classic examples of bureaucratic mismanagement, along with repeated statements by the receptionist that it is not their fault. It is easy to accept/agree that it is not the receptionist’s fault, but the fact that they are acting like a dismissive robot is their fault. I guess this is a learned behaviour given their job, and I can appreciate they may be used to receiving nasty comments, but they should at least wait for some before being so defensive, and dismissive.
Since I had walked a mile to get there I was already feeling the physical impact, and added to this was the fact that I had not slept for over a day due to the usual severe pain. I suppose I could have asked to reschedule, but I didn’t see how the next time would be much different. Sitting for a length of time escalates my pain, and can result in an inability to even sit due to my nervous system demanding that I stop doing the thing that is causing my pain to spike, it’s a weird retracting pain, the urge to move away becomes overwhelming, but obviously I can’t move away from my own body. Standing up or lying down at least changes things for a while until they become deemed to be the enemy.
Eventually I was seen by a physiotherapist, which was the first sign of trouble, since a key part of my problems, and long-term domino effects is sleep deprivation and thus the psychological impact of that should be considered, not just the physical. The interview proceeded to become a bizarre movie like style of being interrogated by stupid cop, who repeated the same questions, yet lacked any comprehension of what the answers meant. I was asked about my sleeping pattern, since I had written about it in my overview. I explained that I don’t have one due to the constant ongoing pain, which sometimes becomes unbearable and overrides even exhaustion, which over the last year and a half often resulted in missing huge chunks of sleep over the week so that I became so exhausted I could get a few hours sleep, and then probably not sleep for another day even though technically that means I’m down twelve hours. Then after a few weeks of this I would manage to get more sleep for a short-while, before the erratic sleep returned. I had to explain that I have had sleep deprivation problems continually, yet it still didn’t sink in, they then asked me what time I set my alarm for this day I explained I set it for nine but then highlighted that I hadn’t actually slept so they said “so you pattern is normally what nine then?” I genuinely had to resist the urge to scream at this person, instead I managed to yet again explain the situation using simple clear words. It was odd, instead of acknowledging this answer I was asked a bunch of weird questions about my how I use an alarm, and how I use a mobile phone. This then turned into further strange questions, which indicated the person didn’t believe what I was saying about not phoning people. This went on for quite some time, and towards the end I realised how much time jumping they had done in regards to trying to piece together a timeline, even though they had a detailed explanation written out in front of them from the four I had filled in previously.
The thing I take away from this interview is that it very much seemed like I was having to prove that I was innocent of committing fraud, that they were trying to trip me up by asking the same thing repeatedly, that they were desperate to find anything to latch onto to prove I was guilty of lying, such as the bizarre mobile phone questions. And then abruptly the interview ended and I was dismissed, at this stage the person had no interest in any further conversation, and was already trying to herd me out the door. Crucially there had been no questions about my psychological state, which given the symptoms should have been a key part of the interview. As I mentioned above, the gravitas of my situation finally hit me in October, the fact it been well over a year, and at this stage I had been suffering from depression for the last two months; it has been pointed out to me that my idea of depression and other people’s has a scale of difference, being fatalistically optimistic and the fact that I’ve had long-term pain of a different type for twenty years, I view depression as an inconvenience, and what I call depression others would categorise as major depression. Having a degree in psychology I am also academically aware of things, including the difficulty of self-diagnosis, and how our beliefs and biases influence our thoughts. I had been given medication to help with the sleep problem, and to help fight off depression, this was an area highlighted by my doctor; in hindsight I should have emphasised it.
If I had ticked the box regarding depression then I am sure I would have been allocated a doctor and not a physiotherapist for the interview, and some of the questions would have been about the psychological impact of my condition. I can at least acknowledge that my involvement is part of the reason why things went the way they did, of course considering I had written about being massively sleep deprived you’d think an assessor would highlight that issue.
Due to how physically demanding the whole event was, and the fact it lasted several hours, my pain levels later that day were a staggering fucking nine for several hours, before dropping back to my normally horrific six or seven. This is on top of the fact that I had not slept for what was approaching two days. Painkillers and alcohol didn’t do anything to the nine rating. I guess my body was flooded with cortisol both from the psychological interrogation as well as the scale of physicality I am not used to.
Miraculously four days later, on Christmas Day, I experienced several hours of a pain level of only one or two! Unfortunately that did not last, and even in to early January I was still probably averaging a six rating.
The shoulder and neck physiotherapy session have ended, I am still carrying out the exercises, and it does seem to have helped a lot. Having started physiotherapy for my stomach, back and hips it seems like the intense pain in my right midsection is starting to reduce a bit.
So once again my thoughts are flooded with daily ponderings about returning to exercise of a more tangible level, and even going back to martial arts in a few weeks, primarily BJJ. Realistically that goal is way off, even if things start improving faster, but it’s nice to have hopeful thoughts and even an anticipation of setting a simple goal. Next time something less depressing.